So today we saw the neurologist and we got great news! The hypotonia panel that they drew in the hospital came back negative. This means that we can rule out any big bad progressive neurological disorder/syndrome that could be causing his weakness. They do want to follow him closely and run further testing. They are now testing him for metabolic disorders. My mind had wandered down this past a couple of weeks ago in the midst of the what ifs, but at the time I stopped myself from borrowing tomorrow's worries. When they started mentioning the various lab work they wanted to do I knew immediately why and again found it surreal. So we are looking down this path as a possibility, but my rational side knows they are just trying to rule out anything that may need to be treated. The reality is still there that it may be nothing more than just hypotonia, which is our prayer. So next week we go for the lab work that is needed and should know something in six weeks. The neurologist did start to prepare me for other test they may need to do in the future. I am thankful everyone is being so thorough, but we are ready for there to be an end in sight.
I have struggled with fear much more than I thought I would if I was ever given this type of situation. God has been teaching me a lot about my need to be in control and trust. It takes a conscious effort at times to not listen to the voice of fear, but know and believe that God is in control of his care. I truly feel that God has led us to the perfect doctors to care for Harrison. If I could only take a backseat and just be mommy.
My prayer is that if there is something underlying that is causing the hypotonia then we will figure it out quickly and easily. That he will start to get stronger daily, and that God will continue to show us how to be the best parents for Harrison. I look forward to the day when we look back on this time and see what God has taught us and see how far He has brought our little man. For now I will just focus on scripture when my mind wanders down the road of what ifs and fear.
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My cup overflows Psalms 23:5
3 comments:
Oh, Krista, I'm so sorry to hear all that you guys have been through with your poor little guy. He's so blessed to have such a smart, loving mommy on his side. I know y'all will get to the bottom of his issues soon, and hopefully all this will be a memory very soon! Your strong faith is inspirational to me for sure - I know that's what's getting you through!
im praying that right along with you! wish i could give you a hug.
So I've caught up on your sweet family and my heart is heavy for you, the mommy. You've got a lot on your shoulders, and now too with a little one on the way.
As an FYI, I would be happy to pray for you and with you. Fear is something that I greatly have to keep in check, so I can relate to you.
If you read a bit on my blog, I'm brutally honest w/ my struggles and shortcomings. I hope you are encouraged as you read to know you are not alone.
Let me know if you need anything.
Lisa Inlow at Gmail dot com.
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